“The Spark” | with Tim Vogt

Close your eyes and think of a time you felt a "spark" with someone or something. Was it the first time you held a microphone? The time you met your best friend? Why is this idea of a "spark" important to our work in the community around people with disabilities?

Listen below to hear Tim Vogt's 3-question interview on this series' theme with host, Katie Bachmeyer.

Transcript:

Katie: So, tell me about a time you saw a spark at Starfire.

Tim: There was a young man that was coming here, Kyle, and he would walk around our day program, and he would walk in a very different way. He would turn his toes inward and make these sideways steps, and he would kind of walk around corners very intentionally. And, I remember, at the time we had a few staff who thought this was a really big problem – that he was acting strangely or it wasn’t appropriate. One staff, a guy named Jon, had noticed that this young man had kind of an interest in martial arts, in ninja-kind of stories. And Jon actually noticed that what Kyle was doing was not strange or weird, it was actually a form of martial arts.

So, the first spark was the noticing of that staff, saying, “Huh? I wonder if this isn’t just weird or this isn’t just strange or this isn’t just a behavior problem. What if this is an intentional clue into who this person really is? Maybe this is one form of communication of who they think they are and who they were born to be.” As a result, another staff started to invite in a local martial arts master to teach for the reason of cultivating this interest that was noticed with this young man. So, Kyle gets an opportunity now, because of these two staff, to be in the presence of somebody who could be a mentor, or a sensei if you will, to his unfolding or emerging identity around the martial arts.

A few months later, Kyle is having a planning session.  His family is coming and our staff are gonna be there. We’re thinking about who is Kyle. And, Bridget says, “We should be inviting Master Korchak, the martial artist that had been teaching the class. He should come and help us think about Kyle’s future.” So again, here’s the next spark, the idea that Master Korchak is not only here to teach about martial arts but he might come to a meeting to help us all imagine what Kyle’s future could look like. And he carries a really interesting part of it, which is this interest, a passion that Kyle has for martial arts. And he knows a lot about that, he’s dedicated his whole life and career to this. So, he’d be a logical person to invite in.

So, in the planning session, they started talking about martial arts and when it came up that Kyle was interested. And the whole circle, everybody in the room – the family and our staff kind of came up with the idea that there’s some Special Olympics classes they could explore around the martial arts and that’s a legitimate thing for people to think of. However, Master Korchak said, “I think he could do my class. I do it every Monday and I think he could come. He’s already good enough to be a part of that. It’s a self-directed journey for everyone that’s in the class, and Kyle’s got enough of an interest and enough of capabilities to participate.”

So, right there you see another spark: validation of Kyle’s passion by an expert in his field, and an invitation out of the disability world, or the special world, and into the regular world, the regular martial arts class. And that really helped that family, I imagine, that everything they believed and knew about him, which is that he deserved a full life and a community was actually true. That there was somebody out there who believed what they believed. So again, you see this fanning of the flames.

So this was 2012, when all this happens, and Kyle starts taking these classes, and we just received an email about a month ago that Kyle has his black belt in gumdo. And that’s actually a story that we’re gonna share next on this series. It took a lot of people to hold the flame of his passion. Kyle, himself, of course, insisting on a life that relates to martial arts. It was our staff, the paid people in Kyle’s life, people in the martial arts community, as well as it was his family. So, it was everybody kind of acting with intention and helping this thing to move forward.

That’s one path, is what happens when a bunch of people keep contributing in little ways over time. Also important to notice, is how very fragile each point along that journey is. Is that it could have been smothered by the doubt of a staff, the certainty of a staff, the doubt of the family, the fear of a community member, lack of ambiguity from Kyle about where does this even go, why invest in this. So, there’s so many places along the story where it could’ve all fallen apart. To us at Starfire, the biggest tragedy would be that a story like this would be lost. And, we actually think that this happen an awful lot. People’s stories get lost because we’re not fanning the flames, and we accidentally smother the points at which these kinds of stories and lives could emerge. So, we really believe that when you notice a spark, the key is to notice it and then to notice your own doubts or worries or concerns, and then to tamper those a little bit, and provide room for that spark to turn into a flame, to catch fire, to spread wildly in a way that would really ignite someone’s whole community, their whole family, their whole selves, their whole future.

 

The Data.
Starfire Cincinnati Data Research
Starfire Cincinnati Data Research

Data plays an important part in the fidelity and growth of our work. Tracking outcomes gives us the ability to share our success in a way that looks concrete, less subjective.

But data on its own is hopeless. That's why we have stories to back our outcome of "Maintaining connections." This data point looks a variety of ways, such as: lastingfriendships, connections to coworkers, or close neighborhood ties. The basic idea is that we are helping people with disabilities connect to relationships with people without disabilities by supporting them in a role that matters to them.

What roles do you have in your life, and how does staying with these roles help you connect to meaningful relationships over time?

 

This is part of our Story Series, “Staying.” Subscribe and get this series in your inbox every week! 

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Four years later...

For the past 4 years, Michelle (see video below) has been meeting with a group of writers at a local coffee shop. [youtube https://www.youtube.com/watch?v=8lDU8MDafI8&w=560&h=315]

"I like the people, the high energy. People in this group are easy-going and great. In the - 'nonjudgmental' - great." - Michelle Dunford, Write Me, I'm Yours co-founder

The group originally connected as part of Michelle's work with Starfire, where they did a writing project together. The project was to engage writers across the city by setting out journals at local coffee shops and inviting people to contribute. They called the project "Write Me, I'm Yours," which is now also the name of their monthly writing group.

"I'm always the first one there. Everyone has their own unique poetry style. I get excited and nervous when I have to read because some of the stuff I write about can be dark." -Michelle

A few things I love about this story.

1) They stayed in touch after their project was through. Working on something cool and interesting together gave this group of writers the gift of lasting ties to one another. That's why we spend a lot of our time doing projects just like Michelle's in our work as community builders, it creates bonds that span time.

2) The effort is completely community-based and driven by the writers themselves. Outside of Starfire's structure and support, without morphing into a "special needs" writing circle solely for Michelle and other people with disabilities, the group of writers made a commitment - to stay in each other's lives year after year, while Starfire stood on the sidelines admiring.

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"Michelle is the glue that keeps the group together. Michelle is the core and things don't feel right when she's not there. There is no difference in how we conduct the circle. We don't censor or adjust the agenda. She's an integral part of the group." -Eva Lewandowski, Write Me, I'm Yours co-founder

3) They have some pretty amazing work coming out of their writing circle. Here's one poem they worked on together with Cincinnati's Poet Laureate Pauletta Hansel.

"As far as I'm concerned, although I do blog and write articles, I don't consider myself a writer. However, the writing circle has allowed me to tap into my creativity. But best of all, it's provided me with a close circle of friends that wouldn't have happened had this circle not existed." - Eva

Stories like this are at the top of our list - as beautiful examples of people coming together over shared passion, and making the most impressive commitment to one another: to stay.

p.s. A look back at 2014, when the "Write Me, I'm Yours" project was first led by Michelle!

[youtube https://www.youtube.com/watch?v=q3nSw7dGsDI&w=560&h=315]

This is part TWO of our Story Series, “Staying.” Subscribe and get this series in your inbox every week! 

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"Staying" | with Tim Vogt

What does it mean to "stay?" Why is this important to our work in the community around people with disabilities? Listen to Tim Vogt's 3-question interview with host, Katie Bachmeyer.

KatieSo, why is the concept of staying important to Starfire’s work?

Tim: There is a great quote by Wendell Berry, and he talks about the marriage vows and they are not for better and for richer and for health, they are for better or worse, richer or poorer, sickness and health. He says that in staying we learn something closer to the truth which is that not everything in life is happy, and not everything in life is great. I think people with disabilities and their families that I know, relate that there is a great joy in life, especially when they get included and supported and loved in a way that we at Starfire hope that they could be. That continues to be a struggle for them and their families. So, if we can think about staying in solidarity, and in fraternity, and in relationship with people, we can be with them in that struggle, and it can lead to some good things, but it could be tough, many tough days.

I also think that when we think about “staying” we think about that same quote reminding us that there’s going to ups and downs and it might be tempting to leave. Leaving is an assumption that somewhere else is going to be better, but staying seems to be an invitation and a commitment to making this place better or this life better or this relationship better. So staying implies, in the depth of that concept, that I’m not just going to get out of here; I’m not going to leave you or this place. I am going to be here. There are going to ups and downs and good days and bad days, but I am still going to be here. So I think staying through those good days and bad days, and through the struggles and through the joys, and paying attention to the closer you get to the truth of what life is all about, what inclusion is all about.

Inclusion is not all happy and fun; it means I accept you as you are. 

I believe you can do better, but I accept you as you are. And you belong already; there is no need for you to have to earn it or prove that you are valuable, more valuable than you already are, so the idea of stay relates to peace. It relates to rest; it relates to some sort of satisfaction, and it relates to time in a really great way that I chose to commit myself to people, or a place, or to an idea, in a way that just gives the long story a chance to unfold. People with disabilities have a really small degree of imagination of story and imagination around their lives. There is a very short story about disability. It fits in this box and goes here and these people go here and that is what defines their life. So it is not a very big story and if we can stay with people and help nurture and participate in their journey and struggle for a better life, then we can see that there is a better story. You have to stay to see that better story.

Katie: Is it important to talk about staying because that isn’t a common reality for people with disabilities for in their lives that people often do not “stay”?

Tim: Yeah, I mean, when we look at the people that we support and the people that we love and know with disabilities, we see a lot of leaving in their lives. You’ve got professionals that are in and out depending on their next job, or if they got fired or promoted or left. So, there’s this constant turnover. And if we’re being really honest, we hear that there’s a lot of absence of community and rejection sometimes for people with disabilities and their families. And, an absence and rejection is a leaving of sorts. Right? Like, you’re left alone. We’re outta here. We’re not gonna be with you anymore. So, when you’ve got a disability, you’ve got this turnover almost in your life. Your social stories are very short. People are in it for a few minutes or a few hours or a few weeks or months as professionals, they’re not really in it for a long period of time. So, the counter, the antidote would be staying, the people that are there for a long time.

There’s also just an interesting, I would call it a creative limitation, that people with disabilities and their families are inviting us into.

A lot of people I know who have disabilities can’t drive. And so, their mobility is limited. They might not be able up and move to a new city for college because college isn’t even an option. Or, they would lose their funding if they moved out of state. Or, the public transportation system doesn’t actually travel between cities, you know. So, the mobility of people with disabilities is really physically limited, and the options of moving about are limited. So, then if we’re asking the question, “How might someone with a disability have a good life?” one of the factors is we that we think the reality is they’re going to be limited in how they move about.

So, we would want to develop local networks and really have people who have stayed around them be part of the story, that would have known them for a long time. The last aspect of stay that I can think of that really matters is that staying relates to taking care of a place and the people in that place. So, there’s another great essay that Wendell Berry wrote about his family’s farm and the generations of his family that have taken care of that place. And there’s a, by taking care of that place, they’re taking care of the people around them and of that place too. So, people who take care of a neighborhood or take care of a block, or take care of a city; because they’ve lived there their whole lives, those are the kind of people who create a culture where somebody’s looking after the place and the people in it.

And, if we could have more people stay and own the caretaking of places, and root themselves deeply, they would grow big networks, and they would, over time, probably build a culture that was very conducive to the lives of people with disabilities and that culture.

 KatieSo, last question. Who do you think is called to stay? And, how do they do that?

 Tim: I think we’re all called to stay. However, I don’t think that any of us are required to stay. There are good reasons for moving on from relationships and places. You can’t afford it, or the person you’re committed to turns out not to be the person that you thought they were, and that’s dangerous. But, I think that the problem is that if we don’t leave the potential for staying open, then we don’t ever invest deeply. We don’t get to know the people around us because we’re already out the door. We’re buying this next house in order to flip it in five years, and move to a new place. So, why would we invest in each other? Why would we care about each other’s well-being? Why would we look out for our neighbors? Why would we bring flowers to the woman whose husband passed away across the street? Why would we, you know, get to know the kids on our block if we’re gonna be gone in a few years’ time? So, the temporary-ness that we start with is key. Or the permanency.

If we start with an idea that this might be a place that I stay, and we find out that it’s not, that’s great because the assumption was there to begin with, and we invested as if we were going to stay. I once met a woman who really challenged me on that. And she said, “I was a military kid. I had to move.” She said, “And, I’m still a military wife now.” And she said, “I still have to move.” And she said, “But every place I go, I invest like I’m gonna be there for the rest of my life.” That was awesome and beautiful.

She didn’t forego relationships, she didn’t create an absence in the neighborhood or in the families around her by assuming that she would be gone. She actively, intentionally said I’m going to invest, because I know I’m gonna be gone but I still need to take care of this place by investing in it as though I’m gonna live here myself. 

So, if I’m a person with a disability and I don’t get to move, but everybody around me is flipping their houses every five years, and everybody is of the mindset that they’re outta here in a few years, then quickly my condition deteriorates, and I could be stuck. And, instead of staying, I’m stuck. Everybody around me – no one knows me. No one’s built a great garden that I can be a part of. Nobody knows when my birthday is. And, I’m not a part of their world either.



Integrated Employment Series #2

Read the first part of our Integrated Employment Series here

Spencer's Job at Local Donut Shop

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Danny's Job at his Local Pub

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"It's good here. I like helping other people. I think it's really nice to see all my friends here. My favorite part of the job is making money."

Erika's Job as a Teacher Assistant at a Daycare

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Mike's job at Custom Cabinetry Business

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https://youtu.be/PcfX-hyPkg8

 

Chris' Job at Downtown Bike Share

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Joe's Dream Job at the Zoo

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Follow our stories and learn more about our approach to getting more people with developmental disabilities into the workforce where they can contribute!!

Instagram.com/starfircincy

Facebook.com/starfirecincy 

www.starfirecouncil.org

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A job and a life - Douglas' Story

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Douglas is going on his 3rd year as an employee at one of Cincinnati's most popular local establishments, Eli’s BBQ. He also has been working at Fireside Pizza for the past 2 years. Both restaurants are in/around the neighborhood of Walnut Hills, and that’s where Douglas lives.

When Douglas comes home from work – you can see the joy in the face, and the connection that has there now. He just glows," Paula, Douglas' mom.

Employment is an important part of life in America. "What do you do?" is one of the most common questions people ask when getting to know you. So when Douglas can answer back, "Eli's and Fireside Pizza," you can imagine how working this raises his status in any conversation.

Here's a glimpse of what Douglas' first year of employment looked like...

https://www.youtube.com/watch?v=txWqXPweqzM&t=10s

Awesome, right? But... a job is still a job. A paycheck is nice, but relationships are what make life truly rich. When we can have both a paycheck and a social life, life finds its sweet spot. So after our Connectors at Starfire helped Douglas get settled in his new paid roles, the further step was discovering relationships.

Douglas' real, true interest "since he was tiny" is in movies. He might not share a lot in conversation, but when the topic of movies comes up, Douglas has a lot to add. So his Connector began reaching out to neighbors who like movies too. Now, several of his neighbors meet up bi-monthly (sometimes weekly) for movie nights (they all share a particular love for the Harry Potter series).

Slowly, these connections have started to show themselves in a "real community" way. This year, Walnut Hills held their annual StreetFest and as Douglas was walking there from his house - he bumped into Anne and Andrew (movie night friends) who were on their way there also. Immediately, they fell into conversation about movies as they carried on their way together to the festival. The simplest moments, like this one, can make all the difference in combating isolation so many people with developmental disabilities feel.

"It’s so hard these days to find real community – and here was real community right in our neighborhood!" his mother expressed. "To have these social connections – and to have that feeling that what he’s communicating is being received and understood – he’s really part of a group."

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Before Starfire, Douglas’ life looked a bit different, and we’re so happy he and his family have joined us on this journey to build community around his passions and in his local neighborhood.

Check out Landlocked Social House, Anne and Andrew's Craft Coffee + Beer start-up on Kickstarter: https://www.kickstarter.com/profile/599834529/about

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Sam ties her new network of seamstresses to a cause. (Starfire Video)

Sam’s Story

https://youtu.be/7vos7fI-ioI

Sam: We’re making baby bibs and burp clothes at silk road textiles for healthy moms and babes.

This year, Sam organized a group of women to make items for at risk moms and babies and enlisted her zumba classmates to donate baby items.

Sasha: I like that it’s staying in the community. You know it’s going to stay right here and help people around us. The best thing about Sam is just she’s so resilient, she doesn’t get frustrated she’s like “okay I will try again.”

Bridget: She took sewing classes at silk road textiles and she really enjoys sewing. So we saw this as an option to keep up the sewing skills and also to meet more people that enjoyed sewing

Sam: Thank you so much just for coming to help- see you the next time

Terry: Sam brings such joy and enthusiasm with her. So she’s part of the fabric of who we are, you know we knit stuff but we also knit community. Sounds kind of cheesy but it’s true.

Katie: What are you really looking forward to still?

 Sam: Helping them out, so like giving them their stuff. What we’re donating.

Wow! This is amazing! Thank you!

Sam continues sewing with the women at silk road textiles and collecting baby items to donate.

March is Developmental Disability Awareness Month. This story is part of NACDD’s ‘Learning Side by Side’ #DDawareness17 series. Follow us on social media to see all of our stories throughout the month!

Learn more: http://www.starfirecouncil.org

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Quilting Together - Andrea's Story (Starfire Video)

https://youtu.be/BaXQZEX_sgA

Maryann: You can present your quilt to Carolyn

Andrea learned to quilt in Mary Ann’s home sewing room

Carolyn: This is awesome are you happy with it?

Maryann: When she saw this quilt coming together she started dancing. I said “stop dancing, and get sewing.”

Carolyn: That’s why we as quilters- that’s why we get hung up on it because we now know what the finished product can look like and were like. “Okay keep working, keep working.”

Maryann: Does it feel happy that you did all the hard work, all those hard days sitting there sewing and then you saw it all come together?

Andrea: Umhm

Maryann: And now you get to bring it into this wonderful place to have it quilted. This was a smaller simpler quilt because it was her first quilt and even that quilt was a lot of work don’t you think?It’s been a good experience I’m so proud of her.

--

March is Developmental Disability Awareness Month. This story is part of NACDD's 'Learning Side by Side' series. Follow us on social media to see all of our stories throughout the month!

Learn more: www.starfirecouncil.org

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2019 Strategic Plan: An Update

It's been 7 years since Starfire set out on a plan as an organization to change the way we support people with developmental disabilities. Our goal was to build a model of support that aligned our impact with our original vision: to build richer social lives for people with developmental disabilities. How we've grown during this transition. It's enough to write a book.

Today, we've gone from a place that supported people with disabilities on outings and in day programs, in groups, mostly set apart from the richness of ordinary community life, to a culture-building movement that puts people with developmental disabilities (as individual selves) at the very center of community life.

Reading back on our Strategic Plan set all those years ago now, it's surprising to find how well each of these statements have held up over time. Not only has each line of this Plan made it through the transition out of 3 segregated programs, a massive flood to our building, and a whole lot of coffees with citizens, funders, families, and volunteers to explain the "why" of all this change, but they have truly served as the guideposts that we hoped them to be.

Here, I'd like to share those statements with you, and our progress to date on each one. You'll notice the five categories are based directly off of John and Connie Lyle O'Brien's Five Valued Experiences. Thank you, thank you, thank you for everyone who believed in us to make it this far.

*Oh... and please excuse the targety outcome jargon, one of the things we are using this document for is to share with other organizations how we made this transition. 

Sharing Places

In 2019, people with disabilities will share places in their local communities with other community citizens.

People with disabilities will be "regulars" at ordinary places, and be known by others. Sharing places will become the springboard for building relationships and making contributions.

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Recommendation #1:    Decrease in the use of facility-based services

Targets:  Transition fully out of facility-based, group-centered Outing and Day Programs (Dec 2012-2016)

Action Steps:

  • Decrease membership in each program gradually until closing date (Sept 2016)

Recommendation #2: Increase in integrated community-based employment and day services

Targets: Build capacity for providing 300 hours per week of integrated services by trained community connector staff (Dec 2016)

Action Steps:

  • Hire staff with desired attributes to be "community connectors" (Dec 2012-present
  • Increase people served to achieve 300 hours per week of integrated services (Jan 2017)

Making Choices

In 2019, Starfire members will make choices about the levels and ways they connect to Starfire and their communities.

Person‐centered tools, approaches and practices will become the standard for people with disabilities to explore options. People with disabilities will create a “safety net of people” that support and stand by each other as they make important choices.

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Recommendation #1: People with disabilities served complete a person-centered visioning session in first year of membership to Starfire (Benchmark #1: PATH meeting)

Targets: 67% of people on track to do a person-centered plan to complete one

Action Steps:

  • Families attend and support PATH goals
  • At least 3 ordinary citizens attend and support PATH goals

Making Contributions

In 2019, people with disabilities will be known as “pillars of the community.”

People with disabilities will have many opportunities to find and explore unique ways they can make contributions to their community and other community citizens. Starfire’s success will be determined by how many members fill “valued roles” in the community.

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Recommendation #1: Increased use of career discovery processes

Target: 15% of people served

Action Steps:

  • Create personalized electronic profiles to share with Starfire's network
  • Conduct benefits analysis with interested people served as needed
  • Utilize persons served social network to explore employment opportunities

Recommendation #2: Focus on the achievement of individual integrated services for individuals with complex needs

Target: 100% of people served receive integrated services

Action Steps:

  •  Each person is supported approximately 136 hours per year around their personal goals and passions

Recommendation #3: People served attaining valued social roles (paid or unpaid positions in the community) that align with their interests, geographic location, and strengths (Benchmark #2: Valued Social Role attainment)

Target: 80% of people served attain a valued social role (internship, job, volunteer position, etc)

Action Steps:

  • Staff support people served in navigating and meeting with existing places and opportunities for valued roles

Growing in Relationships

In 2019, Starfire members will create relationships with other community citizens who share places, passions and interests.

Starfire members will invite people to grow friendships with each other based on mutual respect and affection. Commitment, conversation and consistency will be the foundation for building solid, supportive relationships.

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Recommendation #1: People build a "network of support" that includes people who are not family, unpaid, and do not have disabilities. (Benchmark #3: Increase relationships to ordinary citizens)

Targets: 90% see an increase in their community relationships annually

80% maintain relationships over the course of 12 months

Action Steps:

  • Staff support people served in meeting with new people and connections weekly

Recommendation #2: Educate and engage families on the work of building stronger social networks for their loved ones   

Target: 80% of families are reported to be actively engaged in building social networks

Action Steps:

  • Partner with local family support organization, Good Life Networks to prop up families in the journey
  • Meet bi-annually to discuss progress in building social connections with staff and person served

Recommendation #3: Educate and Engage Ordinary Citizens

Target: 200 citizens annually have deeper understanding around inclusion

Action Steps:

  • Invite ordinary citizens to participate in community building through projects, social, or volunteer opportunities in partnership with a person with disabilities

Experiencing Respect

In 2019, membership in Starfire is a way that people demonstrate and communicate that they are committed to building a vibrant, inclusive community.

Each story written or told about (and by) Starfire reflects respect for the gifts and contributions of its members. People who join Starfire experience the respect of being valued and appreciated for their capacities and contributions to other citizens of greater Cincinnati.

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Recommendation #1: Increase in staff competencies and skills related to integrated employment and community services.

Target: 100% staff trained on the core competencies of our work

Action Steps:

  • Professional development trainings including: Asset Based Community Development, Trauma informed care, Five Valued Experiences
  • Staff attend 3-day intensive trainings on Social Role Valorization within first year of employment
  • Staff attend 2-day summary training on Social Role Valorization bi-annually

 

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#olmsteadaction

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Integrated Employment Series (# 1) #olmsteadAction

Jobs are an important part of people's lives. Yet statistics show that only 18% of people living with the label of developmental disability are employed in the US (Or said another way, 82% of people with developmental disabilities are not in the workforce). Starfire is working to change that picture. We are doing this by building people's social connections. Landing a job often comes down to "who you know," but the average person with developmental disabilities only has a network of 2 community relationships (unpaid, non-family, people without disabilities). At Starfire, 92% of the jobs attained with our support come directly from social connections, so we know our approach is working, even though it makes us a little different. We don't invest people's time and efforts on repetitive "job training readiness" such as mock interviews, resume building, or piecemeal work. Instead, we help people be "known" for their gifts and passions, so that when they apply for a job, their proven abilities are at the forefront of employer's minds. Here are a few stories showcasing this approach.

Becky's Story - SAF Holland

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"Before I was pretty much just sitting on the couch not doing much. I was just really cut off. It got a little more real like as time went on. And I was like, I want to get out there. A lot of people at Starfire helped me out with getting my job and they had a lot of confidence that I would be able to do it and they were like, 'this is you, so you need to get out there and you know, show 'em.'.. Now I got stuff to do and I'm not sitting there bored, so I'm busy and that's what I like to do."

Megan's Story - Mt. Washington Rec Center

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Celebrating Megan's 2nd year of integrated employment!

Molly's Story - Neyra Industries, Inc.

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"I love working with the team that I’m on. Everyone knows my name, everybody’s very friendly there."

"It has been a pleasure having Molly here. She’s always so considerate and she always remembers little tidbits about people. She’s able to help get a lot of the administrative duties out of the way. So it’s helped free up a lot of their time to make our process in finances more efficient." - Molly's supervisor

Emily's Story - Ensemble Theater

pablo-6.png

"I got the job when my friend Ben from Ensemble Theater called up Starfire and was like, 'Where’s Emily at?' He was worried about me. I’d been volunteering for 2 years hanging up posters for plays and taking tickets during the shows. But I wasn’t able to get a ride down there anymore, and my mom couldn’t drive me down there at night because she can’t see very well.

Before Ben called I was looking for a job for 2 months. I turned in a lot of applications but it’s a lot of 'college people' who are getting hired - instead of calling me back. But when Ben called he asked me if I wanted a job and said, 'yes'! I wanted that job! And he said okay. I freaked out! I was very happy.  

This is my first job. The number one thing I’m looking forward to is working, and if I make some money I’ll get a laptop since we don’t have a computer at home. And I like being at a theater. I’ve been listening to musicals since I was in high school, that’s how I got into theater in the first place.

It makes me very, very happy that I know people down there."

Mike's Story - Contemporary Cabinetry East

https://youtu.be/1_LN11ctT-g

Craig's Story - Kinetic Vision

craig.png

"I was at a workshop before. It was different since it was piece meal work. We had to do different tasks each day. I felt like I had to go really fast because you only get paid by the work you complete. One time at the workshop I got yelled at for going too fast. I didn't know it, but they were low on product and they wanted to share the work around to make sure everyone got some. In my head I was just thinking, 'I want to make some good spending cash so I've got to go fast.'

I quit the workshop when I got the job at Kinetic Vision. It felt really good. I like it more here because of the culture – and I get an hourly wage. I don’t have a staff always watching over my shoulder. Everybody’s nice. The boss doesn’t sound or act like bosses typically do. Every once in a while they have food trucks come and in the summer we grill out – us employees get to enjoy that. Employees will bring their kids down and other family members down.

They listen to what I say and they like the work I do. I’ve actually been showing them stuff. I feel like I’m valued." 

Adam's Story - Everything But The House

adam fehr 2.png

"My last job was only temporary. I wanted to find other employment. It was just overwhelming. And I didn’t have my weekends off. Here the job level is just perfect for me. I load trucks and have them sent out. It’s different. It’s a fast paced environment which is really cool.

My boss likes having me here. He’s extremely laid back, he likes what he’s been seeing out of me. He’s just a really cool person to be with.

The best part is being able to get back in the workforce and get some money in my pocket. And I’ve been meeting a lot of new people. I hope to be there for a long time. Stick around and get to know more people and help the company grow. Help it be a well-rounded business. When I get my paycheck I’m going to probably let it sit in the bank and earn a bunch of interest."

Congratulations to Adam (pictured middle) - who recently landed a job at a place he loves that's in his neighborhood.

Follow our series on employment and learn more about our approach to getting more people with developmental disabilities into the workforce where they can contribute!!

Instagram.com/starfircincy

Facebook.com/starfirecincy 

timothyvogt Comments
Girls Day Out

It's not often but when we do all get together, the women in my family are a close knit crew. Ages ranging from 2 to 65, something we can all enjoy together is a trip to the nail salon once a year. The day was unfolding well beyond expected. My two-year old had fallen asleep in the car, and on the way in she miraculously stayed asleep in her stroller. All I could think was how I might actually soak my feet for more than 5 minutes before I'd need to herd her wiggly self around the various bottles of polish and women in foam slippers.

IMG_0149.jpg

I saw her almost immediately. While 6 women in our party claimed our powered massage thrones for the next 30 minutes and dipped our feet into the bubbling LED lighted tubs, my eyes followed her. She was wearing an oversized pink t-shirt, and on it was the logo of a local day program for people with disabilities. Her hair was tousled just in the back, likely a pillow mark. A lanyard hung around her neck. This was different from my own childhood rebellion against femininity, those times I spent carefully trying to achieve what others called a "tom-boy" look. Her appearance instead seemed to be a forgotten chore, a part of her that was taken for granted. My curiosity for her piqued. I wondered what her story was. For the sake of the rest of this post, I'll call her "Ann."

My niece bounced from chair to chair as we moved on to the manicure station, the flower design now decorating her right big toe a topic of her own delight. I spotted Ann again, this time a few tables back from where I sat. Beside her,  a woman with upswept hair and neat clothes sat getting her nails done. Ann's knees were turned toward this other woman with her hands resting in her lap. Waiting.

Ah-ha, I see. The blood inside of me began to boil. I looked around at my mom and sister, wondering if they too were seeing what I was seeing. They were looking over at my little one still asleep (still - a miracle!) and chatting about where to grab lunch next.

Carefully, I pressed my palms onto the stroller and walked over with wet nail polish to the drying station. I sat across from Ann - and the woman she was with. The dryer clicked on and the fan blew cold air onto my wet, blue fingernails and toes.

Ann waited.

The woman drying her nails looked aloof. Annoyed even. She was occupied with the time, but in a different way than Ann was. It was the look of someone on the clock, waiting for their shift to be over.

"Did you get your nails done?" I broke the silence, asking Ann.

"Yesterday," she said. I looked down at her nails, their length unruly, brittle and chipped, but sure enough there was polish clumped and smeared onto them.

Ann's hand lifted from her lap and lovingly, she reached over to sweep the other woman's bangs away. The woman darted her eyes and stiffened, it was clear she wanted nothing more than to disassociate herself from this disabled woman she came with.

It was too much.

"What agency do you work for?" I asked the other woman in my kindest, most curious voice. I was nervous about tipping my hand, revealing that I knew without asking she was Ann's caregiver and that she was on the job, but she was none the wiser:

"Care Options," she said, turning to me with such polite responsiveness that I was taken aback. If she could be so kind to me, she wasn't just having a bad day.

"Oh, I used to work there," I responded calmly, though she was hitting a new a nerve. I knew that agency well and had wrestled with them many times in the past.

Engaging this woman had opened some valve and she began to talk for the first time since I had seen them. Ann put her head on the table and listened as we talked momentarily.

As they got up, I looked deeply into Ann's eyes, "Have a nice weekend," I said.

In my farewell, I hoped Ann could see I was her ally, hoped her caregiver would realize I was disgusted with the way she treated her, wishing I knew how to be less reliant on innuendos and body language and could just come out and express my thoughts directly.

I had to sit outside. I explained to my mom the scenario that had just unfolded in-parallel to our girls day out, and she looked aghast. She hadn't seen any of it. Ann's unkempt appearances as she sat idly by her caregiver who was getting primped on the job were beyond glaring to me.

But even in a salon, where self-care and women bonding are the unmistaken norm, most people didn't notice. Ann was the invisible outsider.

Why couldn't they have just gotten their nails done together? 

How could anyone feel justified getting paid to treat the person they are supposed to be working for so poorly?

My daughter woke up to the sound of my voice, louder and more clipped than usual.

I wanted to call "Care Options" and report this behavior, make a fuss. I am still friends with one of their "consumers" whom I used to be a caregiver for, and over the years she and her family have come a long way to ensure she was getting proper supports. I asked myself if it was worth it or would it be more harmful to my friend if I made a big ordeal out of it. I hadn't even gotten their names, so maybe they would write me off anyway.

Plus, I know this agency. I've had their training first-hand, I was a recipient of it once. They train staff to be documenters of behaviors and meds, to prioritize order and safety. The rest is passing time until your shift is over. People's lives become equivalent to hours on a paycheck. I saw this thought pattern more than once when I was their employee.

Was calling to complain really going to change the way they train their caregivers to think?

It's unusual for an agency to do that, to break mindsets -- the way we do at Starfire. That's one of the reasons I've poured myself into the work here for the past 5 years. Our end game is a shift in culture, we don't stop with just keeping people safe and fed. While it can mean some of that, at Starfire we know it goes way, way beyond the basics of simply keeping people breathing.

What I also don't mean is that we take on the insurmountable task of "fixing" people to be less disabled, like so many agencies try through behavior plans and "life skills" training. We know that this way of offering support people often turns into a trap, where people with disabilities are cordoned off into the same programs with only other people with disabilities into an endless cycle of isolation and repetition. There they become known for their disability, and their assets are lost.

At Starfire we aren't paid to control or manage people with disabilities. Our job is to tackle the root-cause at hand that we understand to be a widespread belief system that leaves people with disabilities out and leads to exclusionary or segregated models in our communities.

So you see, it is other's mindsets that leave people out of ordinary life, not their disability.

So we attend to image in a way that signals to others that this person, who might be seen for their disability at first, is also cared for and valued. We ask that staff and the person they support are doing things together (like getting their nails done), because it models for others what it looks like to include someone with disabilities in a relationship. We try not to be an end for the person we are working with, but rather act as a bridge to more relationships, more opportunities beyond what our paid role can do. So we discover pockets of opportunities where people can contribute in the community.

We do more than just keep people alive. We make space for them to be loved and cherished.

This is what I want every agency and paid support person to want for Ann, but we're not there yet. Still it burns inside to see it happen, and breaks my heart to tell the story when it does.

What more should I have done? What more could I have done? I'll continue to ask how I could have done more. Perhaps my bravest step is writing this blog post. Maybe you'll help by sharing it. I'd love to read your comments.

More from Cincibility: 

A Good Staff: part 1 

Manicures aren't quite so simple

The Five Valued Experiences

Case Files & Memories

Riding the White Horse

 

timothyvogtComment
In Our Lives, At Our Dinner Table

Since 1993, Starfire has been an example of inclusion in Cincinnati. Though the way in which we do our work has evolved over the past 23 years, we have remained steadfast in our passion and philosophy of our work.  That is we know that life is more interesting, more beautiful and our communities more complete when we include our friends, neighbors, and family members with disabilities.  Starfire believes that people with disabilities not only deserve a place in our communities, in our lives, and at our dinner tables, but in fact have beautiful gifts to share once invited. This has been my life’s work over the past 8 years... I have had the privilege to see and be a part of the impact of what happens when people turn off their TVs and turn to each other, when the spark of friendship is ignited through a common interest and when the seeds of love and understanding are planted as people come to belong to each other over time. Our work is in stark contrast to what we see in the world every day: violence, fear, divisive rhetoric, hatred, loneliness, and broken communities.

We are told to fear our neighbors, to be suspicious of those different than us, and to live anonymously among our own kind. Instead this event, and these stories define who we are.

Starfire, and this year of community building projects show us a different way.  A new story: That changing the world can be as simple, as radical, and as revolutionary as quilting with a neighbor like Andrea and MaryAnn, becoming a valued community member like Telly, or planning a bicycling fundraiser like Robbie and Burke.

We know that we cannot force friendship or legislate love but because sponsors and donors invest in our work, because families believe in this work, and because community members and ordinary citizens do this work with us we are changing the very world we live in.  And at it’s a core this is a pretty ordinary way to live.  But the impact on our communities, on our lives, and in the lives of people with disabilities is having an extraordinarily beautiful effect.

Through our stories we see people coming together sharing places, people growing in relationships, people making contributions and choices, and people stepping into valued roles and experiencing respect, one person at a time, one small extraordinary project at a time.

timothyvogtComment
Molly's Story: A Full Life (VIDEO)

https://www.youtube.com/watch?v=ROJExyR9MzQ Molly embarks on the journey toward a full life, filled with relationships, valued roles in the community, and passion. STORY SOIREE 2016 (Starfire Story) by Katie Bachmeyer

Allie: Why is it important for you to meet new people?

Molly: Because I think it’s important to build friendship.

Katie: What were you doing before all of this? Was your life busy do you think?

Molly: My life wasn’t busy at all.

(pause)

Katie: Now it is?

Molly: Yes.

(fade out/in)

Brieanne: We’ve been together for so long I feel like we’re an old couple! Maybe we’re boring now.

Molly: (laughs) No we’re not!

Brieanne: We don’t have anything exciting to say!

Molly: My community would be totally different without meeting Brieanne and her friends I know.

Brieanne: I guess, you’ve just sort of become a part of my friend network and I... It just seems organic and natural if someone asks like, “Hey do you want to do a get together?”I think of all my friends to invite. We’re doing a barbeque, who should I invite? And I just go down my list of friends and you’re -- just on that list. With or without Starfire, I mean you’re always going to be my neighbor and my friend.

Molly: Yep

Brieanne: But we’ve had challenging parts. I mean there some parts that like, probably get on each other’s nerves.

Molly: Right

Brieanne: I’m always late for everything.

Molly: Which I understand now! I’m like uh-oh

Brieanne: And the only time I was early, you were surprised!

(fade in/out)

Molly: Starfire has helped me make friends. If I were still in the day program and I didn’t have like jobs or volunteering I would not know that many people. I’ve been on Bark for Life committee for four years. I love planning the event and meeting the other community members (American Cancer Society fundraising event). And I also volunteer in Leanne’s room in the preschool department.

Leanne: Being in a preschool classroom it’s kind of a fly by the seat of your pants environment. So it’s nice that she can kind of just jump in and help out wherever. And the kids are really receptive to her and enjoy having her around.

Molly: And I also work at Neyra. I love working with the team that I’m on. This is the office area where I put my stuff. Everyone knows my name, everybody’s very friendly there.

Lindsay: It has been a pleasure having Molly here. She’s always so considerate and she always remembers little tidbits about people. She’s able to help get a lot of the administrative duties out of the way. So it’s helped free up a lot of their time to make our process in finances more efficient.

Molly: And I volunteer at May We Help with my friend slash neighbor Terry who’s Executive Director.

Terry: Molly’s got a great personality - she’s just a joyous and passionate person and when I pull up in my driveway

Molly: I always make sure I say “hi” to you guys too.

Terry: Absolutely, that’s what I was going to say. It brings a smile to my face because I know she’s going to say “hi.” It’s just always great to have people like that in your life.

Molly: I think that Terry is one of my best friends because I can tell him stuff.

Terry: She just always brings that, you know always brings that joyous and passionate attitude with her whoever she goes, so it certainly has an impact on my life.

Molly: I don’t know who I would talk to about Pete Rose and Sparky Anderson.

Terry: Me too. I still haven’t showed you those pictures have I?

Molly: No...Hold on I might come over tonight because I’ve got more books to show you…

(fade out)

...Molly continues to build a full life - one relationship at a time.

 

_____

STARFIRE IS: a visionary organization working to build better lives for people in Cincinnati, Ohio. We connect people with developmental disabilities to relationships and uncovers a person's talents and passions - so they can thrive in their communities alongside their neighbors.

 

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5030 Oaklawn Dr. Cincinnati, OH 45227

 

 

 

timothyvogtComment
3 Ways to Change Someone's Life

Have you ever stopped to find out what drives the way you present yourself?Check out these pretty typical Instagram profiles to see what I’m getting at-

  • @JAlanPipes “Maker of the finest luxury smoking pipes”
  • @bjmacwoodwork “Father, Husband, lifelong woodworker. Sharing knowledge makes the world a better place.”
  • @gushmann “Director & amp; Filmmaker”
  • @andreaswiig “Professional Snowboarder. 3x X Games gold Medalist. Pow lover”
  • @seelyseeclimb “Climber, Artist, Writer, Team Five Ten, Risen from the wheelchair, currently in Yosemite”
  • @jacklenniedesigner “Designer, Warner Brothers, Tinker, SSCO, Edinburgh – London”
  • @dchapdelaine “Minster / Adoption / Foster Care / Music / Coffee / Check out the youtube channel”

This is a pretty quick and random group of people, but see if you can pick up on the things that they all have in common?  It’s hard to pin at first because we all subconsciously do this.  Here is the thread –

To the best of our own individual ability we all "put our best foot forward" and try our hardest to display only our characteristics that are most valuable to the people we value the most.

This is pretty intuitive when you say it out loud.  The innate hunger driving this constant instinctual adjusting and tending to ourselves is from our crave for “The Good Things of Life”.  You know…Approval, Acceptance, “to be fully known and fully loved” kind of thing, and naturally everything that makes that good life possible: family, friends, attention, opportunities to grow, money of course, and on and on.

Think about how people introduce themselves- “I’ve worked there for [X] years”, “We are so proud of how our kids turned out”, “The design team I am on was just selected for the new project”, “Our neighborhood has this party every year”, “You have to hear what my sister has been up to..”.

Statements like this reveal that these people have socially valuable roles like Employee, Husband, Father, Wife, Mother, Designer, Team Member, Industry Leader, Culture Maker, and Beloved Neighbor.  The way we choose to convey who we are to others might as well read: “people look up to me”, “I am valuable and interesting”, “impressive, right?

But what you don’t see, and what is equally true, could be something like: “I have no idea what I’m actually doing with my life 90% of the time”, “My retail-therapy habit is trying to kill me”, “The reason I am not comfortable about marriage or kids is because I can’t even begin to process what happened to me growing up”.

We all subconsciously regulate the not-so-attractive traits about ourselves that we can’t change, and simultaneously project our best.  Because in reality, every single person on earth, from the leader of a first world country to a person trapped in sex trafficking, EVERYONE, has within themselves untapped strengths and indelible weaknesses.

Now it’s easy to solely blame bad luck here about whether a person has “the good things in life” or not, but don’t be so quickly tempted to scapegoat the whole picture.

Whether a person gains or loses social value after they are born depends far more than we comprehend on what others expect of that person, and what that person expects of themselves, and on Newton's First Law...

Isaac-Newton-pop-art

Expectations from others and about ourselves are cyclical and self-fulfilling, whether for good or bad.  They are like Snowballs, on a Mountain, in Space (which would make them ice-balls, but stay with me).  Whatever direction it is pushed at first, uphill or downhill, is the direction it will continue and build mass in.  Unless of course, the snowball is acted upon by an outside force... Since that logic is pretty much irrefutable (thanks Newton), it would then seem really important to receive and believe valuable expectations about oneself from the get-go, over negative ones, in order live up to and retain all the countless, valuable and powerful identities we desire… “The Good Things of Life”

Here’s is an example of how negative expectations can tragically strip a person’s social value-

  • Let’s say a grown woman with a fit mind and body cannot communicate in a typical way but has an interest in gardening.  She is then granted support from human services and they determine she needs so much help communicating that someone should be staffed to be with her 12 hours a day.  Her staff person, expecting that the woman would not be able to understand the nuances of gardening, decides it would be best to avoid failure by not going to the garden often and by disclaiming to the members of the garden that the woman should not be given real gardening tasks.

What would those lowered expectations do? The woman will likely be frustrated, even aggressive at this decision.  She is then assumed to be a danger to herself and now requires full time staff and is further restricted from the community.  Which in turn would not only call out more aggressive behavior in her, but she too would begin to believe that she should be restricted from the community - Fulfilling the negative expectations to everyone that she is not able to garden, should not go out often, and is indeed a danger to herself and others.

Here’s the corollary example of how positive expectations can help someone gain valued roles instead:

  • Let’s say this same woman is expected to be active in the community by her staff person instead.  They explore their neighborhood and meet people at the community garden.  She develops a familiarity and competency working with the other gardeners and is expected to contribute and pull her weight because of her new found skill.

What would those raised expectations do? Now of course she is driven to live up to those expectations and by the end of the growing season she has gained the respect of the other members in her neighborhood garden and viewed as an equal there - Fulfilling the positive expectations that she is caring, competent, and needed in her neighborhood.

aristotle

So what is the reason it is assumed (expected) that a person with an intellectual or physical impairment couldn’t, or even shouldn’t gain socially valued roles?  Roles like Employee, Husband, Father, Wife, Mother, Designer, Team Member, Industry Leader, Culture Maker, and Beloved Neighbor?  Let’s lean on the father of deductive reasoning (thanks Aristotle) to find out-

  • IF every single person on earth has within themselves untapped strengths and indelible weaknesses…
  • AND if to the best of our ability we all regulate those indelible weaknesses we can’t change, and simultaneously project our best…
  • AND since whether a person gains or loses social value depends largely on what others expect of that person, and what that person expects of themselves…
  • THEN the reason people who are impaired are assumed to not go anywhere, or to be in fact mere adult children, or liabilities, or just “holy innocent gifts”, or identified solely by their diagnosis, or to be distanced from "more important" people, or even to be justly euthanized…

...The reason may be that impairments can make it impossible to regulate ones not-so-attractive traits, and even impossible to project your best to others.

Is this a valid reason to expect the worst of and for someone?  Or is it actually the most important reason to expect the best of and for someone instead?

Just as humans universally unconsciously portray their best, people with impairments are universally subconsciously devalued, to the point that when a person with an impairment gains a valued role, such as a high school sports coach for example, it is considered a rare phenomenon or even a social miracle.

So what can you do to confront such a universally accepted negative expectation for people with impairments? What could the most meaningful and effective response be to this? How could you actually change someone's life knowing this?

  1. Be aware of the negative expectations and ways a person is presented that are limiting their life

  2. Be in a person’s life and get to know someone beyond what impairs them

  3. Believe and expect in a radically new or even best self for a person and work together strategically towards that end

  4. (Bonus) Be encouraged to know that the belief and support of even just one person can be enough to stem off the torrential undercurrent of lowered expectations, and certainly enough to change a person’s life.

Jan GoingsComment
Bonsai

How it came to be decided that bonsai might be a pursuit is a longer story.  But, we found ourselves one morning Googling bonsai, and given Becky’s previous work with fairy gardens and love of plant life in the miniature, it seemed like a good next step. Community building work is often slow, long haul work.  We don’t fully recognize our efforts until after some time when the long view comes into focus.  There’s research, trial and error, meeting new people whom we hope will become friends or advocates, and there are small successes, some failures, and some days suspended in what’s next apprehension.

Every once in awhile though, community building is fast, go now work, and those are the days I love.  After series of Facebook messages, an email and some texts the week before, and we found ourselves on Wednesday afternoon waiting to meet Lemual outside of the Krohn Conservatory.  We agreed to meet at 12:30, to walk and talk together while checking out the bonsai display there.  Being Butterfly Show season in Cincinnati, I paid admission for the three of us, and let Lemual lead the way, observing both his and Becky’s fascination for the ingenuity of the landscaping outside, the variations of cacti and the dry air of the greenhouse, the misty coolness and the vibrant colors of the orchid room.

bougan

bougan

Eventually we meandered into the bonsai room.  Lemual’s thoughts on gardening and cultivating trailed like the vines of the bougainvillea: green sprouty fingers folding into colorful flowers, his words tumbling from one idea to the next beautiful reflection and thought on plants and growing.

He thumbed through his Instagram feeds showing us potters who specialize in bonsai containers, boutique bonsai stores in Florida, pictures of pretty plants he’d seen and snapped just because of their colors or something interesting about the way they looked.

beckyLemual

beckyLemual

The purpose of bonsai, we learned was two-fold: beauty and appreciation of beauty for the viewer of the bonsai, and an exercise in effort, patience, and creative design by the grower. To start, one only needs a bit of material, a shoot, a seed, a small tree or shrub, and lots of patience over time.

It reminded me of community building work. To start, one only needs a bit of source material, an idea, a seedling if you will, a passion or interest. From there, the work continues over time, designing, pruning, growing.

training

training

We paused in front of the Texas Ebony. The tag read In Training Since 2008. I asked Lemual what “in training” meant and he explained that the bonsai is never finished. Because it is a living, growing thing, all trees are always in training, making small adjustments, cuts, and crafting a design over its lifetime.

Much like the Texas Ebony, I’ve also been in training since 2008 with much more growing, pruning, patience, and designing to do. Bonsai, like community building, is never a finished piece of work. Even though Becky is employed part-time as a data clerk at SAF-Holland, volunteers at GreenAcres once a week with the garden education team (logging the most volunteer hours of any volunteer in 2015), is on the Dirt Crew at the Civic Garden Center, is getting connected to Hamilton County Parks invasive removal species team, is a reoccurring guest (and potential future member) of the Monfort Heights / White Oak Ladies Garden Club, and considering joining the Greater Cincinnati Bonsai Society, the work of community building is never done.

Because we are living, growing things, we are always in training, making small adjustments, cuts, and crafting our design over our lifetime.

invasive

invasive

becky garden club

becky garden club

The right thing, and the hardest thing

 This is a reflection from Katie, an intern who started a few months ago....Here are her first impressions of what it's like to walk into a Starfire circle:

“Sometimes the hardest thing and the right thing are the same.” -The Fray

Starfire is located in Madisonville in a very pleasant building.  What makes Starfire’s space pleasing to me is mainly the abundance of windows. These windows allow for plenty of natural lighting creating a bright and cheerful ambiance. There are also many rooms available for work, meetings, and activities. Beyond being aesthetically pleasing, Starfire is filled with extremely kind and friendly people, making it an overall delightful place to spend time. But what if this was where you spent the majority of your time whenever you weren’t at home? What if you passed through these bright halls and saw these same friendly faces multiple times a week for years? It wouldn’t matter how pleasant the building was or how nice the people were, there would be something that was missing.

As human beings we are social creatures that are in need of a sense of belonging, a regular chance to meet new people, and opportunities to form relationships- platonic and romantic. So as great as Starfire’s home base in Madisonville is, what would it mean for people if that was all that Starfire had to offer them. Sure, it would be safe and free of risk to gather people at the same place every day where there is a controlled environment, but where is the growth and opportunity in that? Where is the possibility for connection? This is where the fear of the unknown has to be pushed aside and the idea of shared places is put in its place.

Before I was introduced to Starfire I would not have thought twice about having people meet at Starfire every day. It sounds like a great idea to me, a pleasant space with kind people to help people with disabilities have a better life. Yet, the first thing I learned at Starfire is that a better life is not at 5030 Oaklawn Drive, Cincinnati, OH, it is anywhere but. By this I mean that there is no one place that people can be sent to have a better life, because a better life is all around us on front porches, at parks, in coffee shops, at the grocery store, in a yoga studio, in the work place, and so much more.

Every person who is a part of Starfire is a pioneer and a trailblazer who is trying to break the pattern of how people with disabilities are excluded by society. So, what is Starfire doing instead of meeting at the same place every day? They are asking themselves, “How can we take people to the community instead of just staying at Starfire?” People with and without disabilities are getting together and choosing different projects and interests to create their own shared places in the community. It is all about gathering at cafes, parks, and neighbor’s porches because these are the places that have the possibility for connection. However, connection and relationships are not just found because a person is brought to a coffee shop, there is so much more to it. It takes showing up, and not just once, but continuously, being open to meeting others, allowing for complete inclusion, and not being afraid to be hospitable and the welcomer.

As easy as it would be to create a community within the walls of Starfire on Oaklawn Drive, it would not be benefiting people who already have a hard enough time being isolated by society. “We have to find strength in the struggle,” said Tim part of Starfire’s staff. It has to be known that just because the intentions are there to do something great, it doesn’t mean it will happen easily. Shared places in the community take a lot of time and effort, but once they are created they can have a profound effect on all that are involved. I am about to experience my first Starfire shared place this evening as I attend Amanda’s “Sip N Sketch” at a coffee shop in Northside. I know that Amanda repeatedly worked long and hard on this project to create a place that involved her passion for drawing and art. Stay tuned for my next post which will be about my experience at Amanda’s “Sip N Sketch”.

Jan GoingsComment
Doug's Story: Navigating the Arts

Belonging to the present moment is one of the challenges of this work. Goals are important, just as learning from our past is, but it’s easy to get caught up in the past or the future and wind up getting nowhere. If we spend our time reminiscing, the pitfalls and mistakes will turn us inward. Wondering about the future worst-case scenario, and nothing we do will seem like it’s enough. That’s why our faith and our efforts are best used when they are locked into the present moment. Gradually, the coffee we had with a neighbor, the class we joined at a dance studio, the idea we presented to the art museum, one-by-one collect like tiny pixels until every moment adds up and stepping back, a beautiful story of “the good life” emerges.

dougReginaDoug and Regina from the Contemporary Arts Center, taking a break from his role as a museum guide.

A Moment:

May 5, 2016 - 2:30pm Contemporary Art Center

Cincinnati, OH

On this day I find Doug by the welcome desk. With his brilliant grin and sarcastic eyes, he is making small talk with the ladies behind the desk.

“Hey! Long-time no see,” I chirp.

His wheelchair clicks into gear and I’m led through the employee elevator and hallways, into the underbelly of the CAC. Holding still among the crisp white walls and soft lights, we pass by sculptures made of string and exhibitions with culturally disruptive names like “Chasing the Whale and Other Endless Pursuits.”

Doug lives a few blocks north from here, in a nice apartment in Over-the-Rhine where up-and-coming young professionals are flocking. Up and comers like Doug. Except until this day, I have only seen Doug in a setting where his wheelchair and speech device are one among a swath of other disability-related imagery, in a day program with other people with developmental disabilities. Back then, Doug was a disabled young man going to a place that fit with his disability. But on this day, Doug is a lover of art, a man with insights and humor, and a camera operator who is giving me access to the “employee-only” corridors of the art center. Today, he is surrounded by glass-enclosed artworks and cluttered cubicles and sculptures made of string. I still see his disability, but I also see Doug.

He debriefs quickly with his supervisor about the next film that he’ll be working on, and one of his co-workers attaches a tiny GoPro camera to Doug’s wheelchair. Things are moving fast and I realize I underestimated how much work he needs to get done while I’m there, and that I might actually be in the way. Ben, his staff from Starfire, walks with him through the exhibits directing the shot, and Doug follows cue. The GoPro and wheelchair combination is a perfect set up for recording art smoothly, in a way that helps the viewer arrive at the exhibit through Doug’s point of view. His vantage point is not just different; it’s instructive and useful.

Doug’s story is a success story. Through the use of his wheelchair and a GoPro camera, he has landed a job at a local art museum and become an integral part of their marketing and communications team. His videos are played on the Contemporary Art Center's website and Vimeo, and have become an asset for the organization.

This is also a long story - of a billion steps that were taken leading up to this day, when I am standing by Doug getting swept up in his work. And that is my take away. This moment is one of many - and as each stacks on the other, they will continue to build and deepen the relationships and valuable contributions Doug is making.

As we head back toward the editing suite where Doug uploads his footage for the editor to work with, I hear the bantering back and forth of co-workers who truly love to work with one another.  Seeing this, I understand that above all else in common, greatest gift we share in all of us is love. When that gift is both accepted and reciprocated, it makes belonging to the present moment not only more manageable, but an altogether joyful thing.

To view Doug and the Contemporary Art Center's work together, check out their videos gallery tours here: https://vimeo.com/contemporaryartscenter/videos

 

timothyvogtComment
Starfire's Response to Disability Rights Ohio Class Action Lawsuit

March 31, 2016, a federal class-action lawsuit was filed by Disability Rights Ohio (DRO) advocates claiming that the state of Ohio is illegally segregating individuals with developmental disabilities. The purpose of the lawsuit is to increase choices for people with disabilities, particularly with regard to more options for people with disabilities to live, work, and socialize in the community.  You can read the full lawsuit here. This lawsuit comes at the tail end of our journey out of segregated services.

In 2010, Starfire’s transformation from segregated services to integrated supports for people with developmental disabilities began.  Six years ago we gathered families, people with disabilities, board members, staff, and volunteers to build a new Strategic Plan together with the realization that Starfire’s previous model of focusing on social entertainment and fun only produced a temporary, unsustainable impact on people with disabilities’ experience of social isolation.

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Our change was intentional. We felt we had a moral obligation to shift away from segregated services and instead into focusing all of our work in supporting people with disabilities into growing in relationships with ordinary citizens, making choices, experiencing respect, making contributions, and sharing ordinary community places with other citizens.

It has been the right path for Starfire to take though it was not without difficulties.  We know that organizations, families, and people with disabilities embarking on this shift will face many of the same challenges we have overcome, and continue to wrestle with.  This journey is not without many tough conversations, difficult questions, and time.

And yet, it has led to our most worthwhile, and beautiful work to date.

We believe that the responsibility to change is not just on the service system, but also relies on caring people who are willing to build relationships with people with disabilities and families who are interested in being part of this social innovation.  Starfire believes the future of disability support belongs in the community.  We know that you cannot legislate love or force friendship.  That is why  we are devoted to supporting people with developmental disabilities in finding their place in community by working in a person-centered model, by partnering with families, ordinary people, and businesses who believe in our mission.

We are steadfast in continuing our work in light of this recent litigation and committed to including our friends, family members and neighbors with disabilities as the central focus of our work: one person at a time.

timothyvogt Comment
For inclusion and hope (an invitation)

Expectations for Starfire's first year of "collaboration projects" were high, though their design was simple enough: creative ideas built on shared passion - done in the spirit of inclusion. These projects were invented for people with developmental disabilities who belonged to our post-high school day program as a sort of capstone, or final benchmark before they moved on. Inclusion being our end goal, we knew not to base these projects on shared labels, like disability - but on a more commonly perceived denominator - shared passions. So whether it was cars, fashion,  local history, or gardening.... passion and inclusion were to be at the center of these projects - not Down Syndrome or Autism or Cerebral Palsy. The goal of inclusion for these projects also meant that each was designed to cultivate a real, authentic life experience in the community. That is, people with and without disabilities meeting over common interests to collaborate. To find people willing to be part of this first year of projects, we had to put our asset-based community development training to the test. We knew from this training that our communities were not vapid, boring places to live but in fact rich, vibrant places that simply needed to be tapped for their resources.

"Every community, no matter its state, has possibility. Every community member, no matter who, has something to offer."

Sure enough... Out of the woodwork came genealogists, screenwriters, bicycle commuters, and car enthusiasts... We plotted those people willing to share their passions on a digital map of Cincinnati and started to envision the future of our work, where inclusion was built one project at a time. Even more exciting was how different the invitation to ordinary citizens sounded. It wasn't the same as asking volunteers to join congregated activities (activities involving a group of people with disabilities). There were no sign up sheets, no service hours, no coercion. The invitation felt personal, a no-brainer for most, even flattering to some. You want me to share my love of xyz??? People were gung-ho to do something productive that got them out of the house and networking with people who were like them. Not only that, but this passion-centered design of projects turned out to be a source of momentum, and people worked overtime to make their project a success. Ultimately this blood, sweat, and tears proved to be what was most beautiful about collaboration projects: the drive was relationships. And hope.

Out of this experience, the potential to form sustainable, authentic relationships grew. It was everything we hoped for, mostly, when we imagined an inclusive Cincinnati. And while we didn't quite know it then, these first projects became our prototype for how we would design our work of inclusion moving forward.

This was all going on during my first year working at Starfire, and at some point I was told to pull out a camera. Someone had to document what was happening.  My sister's mini dv camcorder in hand and a digital voice recorder for a microphone, I began to follow the story of inclusion unfolding all over the city. A stack of tapes soon filled the corner bookshelf by my desk. By the time graduation rolled around, I had enough film to create a 1-2 minute video for each project and these played the night of the ceremony. Among them was a play adaptation of a book, a written and photographed montage of stories across Cincinnati screen printed into a mural, a car show,  a musical production,  and a film festival on street cycling.  We hoped the people watching would not just clap and leave without realizing what we had over the last 6 months: that these projects somehow managed to get at the heart of what it means to truly be included. And they did so not by contriving “special” scenarios for people based on their label of disability, but by telling a bigger story than disability - a new story.

Today, my mini dv camcorder is a more impressive Canon with two lenses I'm still figuring out when to use, and a few real microphones have been added to the arsenal. "Graduation" night has morphed into one of Starfire's biggest fundraising events and an entire night of storytelling through video. I now have over 80 of these 1-2 minute videos under my belt, and equalling almost as many are the collaboration projects that have been done over the past four years. Admittedly, this pressure to create 20 more videos every year puts me in a bit of a panic in the months before June. I want badly to get the story right. My dreams fill with sequences to the footage I've collected, the narrative writes in my head over breakfast. I doubt myself before I go into an interview, and I wonder how else I could have asked the question when I am done filming it. Editing turns days into night quickly, my eyes start seeing floaters and my shoulders ache. Sometimes it feels like I'm not equipped, like I don't have the talent or the creativity or the finesse to pull it off another year. And this story is too important not to get right. Feels a lot like writers block.

Then I remember back to the first year, to a crammed room with Ronny and Jovan and Leah and Krista and Sarah and Brandon and JC and Jason and Candice all there. Projects aren't even real yet, they are still an idea at that point. I am two months into my job. People with developmental disabilities from the day program gathered with staff to take turns sharing what their project idea was:

"My project is 'Cheeseburger Coke Parties,'"

"Mine is a play adaptation of the book Waddie Welcome,"

"My project is a film festival called 'Bikes and Busses are Better than Cars'....."

Each announcement is followed by an absolute eruption of cheering. The kind of unadulterated cheering that is not for the sake of cheering itself, but is indeed the purest and only available reaction to feeling in the room. We were onto something, it was known even then. Before my own eyes, people were shedding their label of disability and owning a new story of strength and commonality through these projects. And courage poured out - right out, I tell you - of the center of people's hearts as they got up and spoke. There was hope.

I found myself sobbing in Tim's office afterward. It was the most beautiful moment I had ever been a part of, and I felt so new and unworthy and yet unquestionably welcomed and invited. That feeling - that's Starfire.

So, dear reader, if you decide to show up this June at the 20th Century Theater - you may have the chance to hear this cheering once more. It comes at the end of everyone's video. When that cheering hits you unawares (if it does the way it did me), look around at everyone who is part of this emerging story of inclusion in Cincinnati. And when you do, just know that like everyone else here this evening - you are also whole, worthy and invited. And this hope is for you, too.

See you there,

Katie

#starfirestories

 

timothyvogt Comments
Holy Thursday

IMG_0864 Last week, at our weekly roundtable conversation about our inclusion efforts, Amanda stood up and extended an invitation.  She and Bridget had been planning a "Sip & Sketch" and she wanted to make sure everyone knew about it.  They had designed it based off of Amanda's love of art.  They wanted a regular place where anyone could show up and draw together, so they worked out a plan with a local cafe, and then began planning and inviting.

It was a beautiful moment, and the first time in the four years I've known Amanda that she stood up in front of a group to speak like this.  Bridget said they had to print up extra flyers as Amanda had handed out so many of the original batch.  This was obviously a big deal.

These projects are my favorite work at Starfire.  They help make Cincinnati more interesting, and, of course, include someone at the center who has lived most of their life on the outside.

But they always come with a great deal of risk.  Will anyone show up?  Will the people who say they care about us be there?  Will it even matter that we've spent all this time planning and inviting?

Our mentors always start meetings reminding us that "whoever shows up will be the ones who were meant to be here."  It's a nice way of hedging our bets in case no one else shows.  It's a preventative protection against the rejection we are constantly absorbing with and on behalf of each other.

The first monthly "Sip & Sketch" was planned for a Thursday in March.  Holy Thursday, ironically, when the image of people breaking bread together is top of mind and we prepare ourselves to think about hope-lost and hope-found.

It was supposed to start at 6:30.

When Bridget and I arrived at 6:15, Amanda and her mother and sister were already there with coffees in hand, huddled around a small table in front of the cafe.

We ordered our own drinks and made our way to the back of the cafe.  It was crowded, with people on their laptops, working quietly on their own .  There was an open table of four, which was perfect for these four brave women:  Amanda, Beth, Andrea and Bridget.

But what if other people showed up, as we hoped?  There were only two small tables unoccupied.  I pulled one of them over to make room for six, expecting that at least two would show up...wouldn't they?

In a moment of daring, I pulled over the second table, making room for eight.  It was a risk.  If those four extra seats remained empty, it would be another wound for Amanda and her mother and sister, who have had years of sitting, walking and being alone together.  And it would be rough on Bridget, who poured her heart into honoring Amanda's love of art, birds and eclectic conversations by connecting her with others who share the same orbit.

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The clock hit 6:45.  It was pouring down rain.  We were all thinking the same thing:  Surely people are caught in traffic, or waiting for the rain to let up.  Surely it won't be just us here tonight.   Right?

I started making the excuses in my head:  rain, Easter weekend.  I began telling myself it was no big deal:  This is the first of a monthly gathering....Surely we'll end up with a few more next month and a few more the month after that?... I started doing a mental analysis of how we could get more people here next time.  I even asked Amanda if she was open to having a featured artist each time, thinking "at least that means one person would show up."  I saw a woman walk in who had a cup of coffee and looked our way with a smile.  She sat down by herself with nothing to do.  "Maybe she is looking for us," I thought.  I gathered some dishes to take up, and intentionally walked by her to make the invitation.  "No thank you," she said.  My hopes sank.

The clock hit 7:00.  Amanda began asking about people by name.

"Is Ursula coming?"

"Is Grey Coming?"

"Is Jen coming?"

Each time she asked, I winced.  I thought it might be time for me and our two sons to make our way over to their table.  At least the three of us joining them would fill up the table.  Maybe Amanda and her family and Bridget would forget that no one else had showed up if we filled the empty chairs.  And I reminded myself of those hollow words "whoever shows up will be the ones who were meant to be here."  I guess it was just Amanda and her family and Bridget and our family meant to be here tonight.  I want to believe those words so much, and I tell others that same thing so they won't feel rejected, should the worst happen.  But deep down, we know it hurts.

And we all knew the worst thing we feared about tonight was going to happen:  No one, despite our best efforts, was joining us.

And then....Jen walked down the hallway!

My heart leapt and I sighed.  Thank God for Jen!  We thought she might come.  She said she would.  And she did!

"Michaella is up front getting coffee," Jen said as she gave us all hugs and sat down next to Amanda.

Michaella was here?  Awesome.  Thank you, Michaella!  That's two!  OK, we're good.  The day was saved.

Moments later, Grey walked in, apologizing for being late, and brightening up the room with her big beautiful smile.  Grey!  You are more amazing to us right now than you could ever imagine!  She pulled out her watercolors and started catching up with Amanda and getting to know Amanda's family.

There was only one empty chair, and Grey arriving had already filled our wildest dreams for the evening.  These seven ladies all chatted and complimented each other's art.

Who could ask for anything more?

And then Ursula walked in.  She even had a copy of her comic book for Amanda!  Sweet, thoughtful, wonderful Ursula.

What a big beautiful, full table of artists.

IMG_0909

Bridget and I left around 8:30, and exhaled.  All of our hopes and fears and worries and doubts had left us mentally and emotionally exhausted.

But it was all OK.  We held that last image of them happily chatting and working away.

And Jen even texted Bridget a short while later that a patron had come over to the table and asked to be included in the next one!

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These are the moments that keep us all going.  The risk for people like Amanda and her mom is a big one:  If you put yourself out there, what happens if no one shows?  Does that mean you're "supposed to be" alone?  Do you eventually stop trying?

And if you're Bridget, it might seem tempting to avoid the potential letdown by doing something that doesn't require anyone but you and Amanda.  If the two of them go bowling or to a movie, there's no hurt if no one else shows.

Avoiding rejection is a safe place in the short term. But it's a lonely place.  I wonder if Jen and Grey and Ursula and Michaella know what it means that they showed up.  Sure, it's nice, but do they have any clue how important it was that they chose to spend an evening drawing instead of getting home early on a rainy night?  Do they have any inkling of how beautiful their choice was?

The people who were supposed to be there showed up last night, even if it wasn't on our timeline.   Holy Thursday, indeed.

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timothyvogt Comments